Disability and Chronic Fatigue Syndrome

Author: Nancy G. Klimas
Publisher: Routledge
ISBN: 113678988X
Format: PDF, Kindle
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Because of the individual and varying symptoms of chronic fatigue syndrome, medical guidelines encompassing the needs of every patient simply do not exist. Through proven research and recommendations for future treatment, Disability and Chronic Fatigue Syndrome: Clinical, Legal, and Patient Perspectives discusses the difficult subject of how to diagnose disability in chronic fatigue syndrome patients, how to determine the severity of a patient’s disability, and how new disability guidelines would make more chronic fatigue patients eligible to apply for disability benefits. From this information, you will gain a clearer understanding of chronic fatigue syndrome, enabling you to more accurately assess a patient’s condition or decide if your client is eligible for disability benefits. Essential for clinicians, lawyers, patients, and medical insurers, Disability and Chronic Fatigue Syndrome provides an outline of disability guidelines established by the Social Security Administration (SSA), the Veterans’Administration, and the American Medical Association, as well as federal guidelines. While gaining information on the different types of disability insurance available to chronic fatigue patients, such as the Long Term Disability (LTD) policy, you will also learn how standard procedures such as psychiatric evaluation, neuropsychological testing, and physical capacity measurement can both help and hinder the process of determining disability in a patient. In addition, Disability and Chronic Fatigue Syndrome provides insight into: the symptoms of chronic fatigue syndrome, such as inability to work and level of stamina, in accordance with medical and legal definitions disability guidelines set by the SSA how patients’varying symptoms and conflicting findings affect disability diagnosis in chronic fatigue syndrome patients by SSA standards plans by the Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) Association of America to work with the SSA concerning strategies to dissolve barriers to Social Security Disability Income Benefits for patients and to advocate for up-to-date information on CFIDS in the SSA’s Listing of Impairments. tips on applying for SSA benefits claims that insurance companies have used misleading surveillance videos and fraud to discontinue disability benefits to patients in need of coverage Since the Social Security Administration does not currently consider a CFIDS diagnosis enough to win a disability claim, Disability and Chronic Fatigue Syndrome also contains many recommendations for improving federal disability guidelines, such as using results from functional evaluations, neuropsychological testing, and exercise endurance testing as evidence of impairment. For less severe cases, this book provides you with suggestions for rehabilitation of CFS patients before disability claims are made, including patient training and education, dependency counseling, muscular conditioning, and occupational therapy. Whether you are a patient, clinician, lawyer, or medical insurer, Disability and Chronic Fatigue Syndrome will guide you through the complex issues surrounding disability and this intricate disease.

Pediatric Chronic Fatigue Syndrome

Author: Kenny De Meirleir
Publisher: CRC Press
ISBN: 9780789035325
Format: PDF
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Help young CFS sufferers cope with this debilitating illness Chronic Fatigue Syndrome (CFS) is a debilitating illness that can have devastating effects for those afflicted, especially children and adolescents. Pediatric Chronic Fatigue Syndrome discusses this growing problem and its many facets in depth, including the mounting prevalence of incidents in the population and detailed explanations of diagnostic criteria. Case studies are provided to illustrate the issues those afflicted with CFS face, such as increasing isolation, decreasing school attendance, the length of time it typically takes to get diagnosed, and the impact on leisure activities. Current criteria for CFS were designed for use in adults, with few studies done on assessing how appropriate these criteria are for children and adolescents. Pediatric Chronic Fatigue Syndrome provides the criteria for first-time diagnosis of pediatric CFS and includes practical recommendations developed by the International Association of Chronic Fatigue Syndrome Pediatric Case Definition Working Group. This book closely examines the potential impact that Chronic Fatigue Syndrome has on child and adolescent functioning, psychological factors, social factors, and the suffering endured from symptoms. Guidelines are provided on ways ME-CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) can be addressed in primary practice. Topics in Pediatric Chronic Fatigue Syndrome include: ME/CFS CACFS (Chronic Fatigues Syndrome in Children and Adolescents) the common problem of Munchausen-by-proxy research on the psychosocial, family, and physical functioning comparing children and adolescents with CFS and those without CFS using theory in clinical practice guidelines on how ME/CFS can be addressed in primary practice overview of CFS aspects for healthcare professionals who may be called on to diagnose or treat the illness and more Pediatric Chronic Fatigue Syndrome is timely, important information for health professionals, researchers, counselors, caregivers, parents of children and adolescents with CFS, and patients with CFS.

Innovations in Chronic Fatigue Syndrome Research and Clinical Practice

Author: Roberto Patarca Montero
Publisher: CRC Press
ISBN: 9780789014269
Format: PDF, Kindle
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Stay current on the pressing issues affecting chronic fatigue syndrome! Presenting vital new information on the biomedical community’s ongoing struggle to treat this crippling disorder, Innovations in Chronic Fatigue Syndrome Research and Clinical Practice documents the proceedings of the American Association of Chronic Fatigue Syndrome's 5th International Research, Clinical and Patient Conference. This insightful collection of articles by researchers and healthcare professionals deals primarily with two concerns of the AACFS-refining the clinical definition of CFS and renaming the disease to eliminate its negative connotation, and treating the disease through pathophysiological methods. The findings prove essential for healthcare professionals, biomedical researchers, and anyone suffering from this disabling and misunderstood disorder. Innovations in Chronic Fatigue Syndrome Research and Clinical Practice includes current research findings on: the “attitudinal impasse” between CFS sufferers and their physicians the effect diagnostic labels have on attributions for CFS subtypes of individuals with CFS based on sociodemographics, illness onset and duration, stressful precipitating events, symptom frequency, and comorbidity characteristics the relationship between comorbid Major Depressive Disorder (MDD) and frequency of CFS symptoms health-related personality variables in CFS and multiple sclerosis Innovations in Chronic Fatigue Syndrome Research and Clinical Practice is the latest chapter in the continuing search for understanding and increased awareness of CFS. It is must reading for anyone connected with the disease--personally or professionally.

Myalgic Encephalomyelitis Chronic Fatigue Syndrome

Author: Kenny Meirleir
Publisher: CRC Press
ISBN: 9780789022073
Format: PDF, ePub, Mobi
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An important medical milestone for anyone connected with ME/CFS! Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols includes a clinical definition (clinical diagnostic criteria) for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The clinical case definition was developed by an expert medical consensus panel of treating physicians, teaching faculty and world leaders in the research of ME/CFS. An expert subcommittee of Health Canada established the Terms of Reference for the consensus panel. The definition more adequately reflects the complexity of symptoms of a given patient’s pathogenesis and should establish ME/CFS as a distinct medical entity and help distinguish it from overlapping medical conditions in the absence of a definitive laboratory test. “The clinical definition will enable clinicians to make an early diagnosis which may assist in lessening the impact of ME/CFS in some patients,” said Dr. Bruce M. Carruthers, lead author of the definition. “It will reduce the expensive problem of patients being sent to many specialists before being diagnosed and will allow patients to receive appropriate treatments in a timely fashion.” The panel's clinical case definition determines that more of the prominent symptoms are compulsory and symptoms that share a common region of pathogenesis are grouped together for clarity. In addition to severe prolonged fatigue, the definition includes the hallmark symptoms of post-exertional malaise and/or fatigue, sleep dysfunction, pain, two or more of the given neurological/cognitive manifestations, and at least one of the given symptoms from two of the categories of autonomic, neuroendocrine, and immune manifestations. Diagnostic exclusions and common co-morbid entities are also given. The special issue of the Journal of Chronic Fatigue Syndrome also includes a discussion of prominent symptoms, clinical practice diagnostic and treatment guidelines based on the best available research evidence, and an overview of available research on ME/CFS. The expert panel of 11 physicians—who have diagnosed and/or treated more than 20,000 ME/CFS patients between them—has developed a clinical case definition that provides a flexible conceptual framework based on the characteristic patterns of symptom clusters, which reflect specific areas of pathogenesis. The expert subcommittee of Health Canada selected the expert consensus panel. Authors include: Dr. Bruce M. Carruthers, lead author of the consensus document; co-author of the draft of the original version of the ME/CFS clinical definition, diagnostic and treatment protocols document; internal medicine, Galiano, British Columbia. Dr. Anil Kumar Jain, co-author of the draft the original version of the ME/CFS consensus document, affiliate of Ottawa Hospital, Ontario. Dr. Kenny L. De Meirleir, Professor Physiology and Medicine, Vrije Universiteit Brussel, Brussels, Belgium; ME/CFS researcher and clinician; organizer of the World Congress on Chronic Fatigue Syndrome and Related Disorders; a board member of the American Association for Chronic Fatigue Syndrome; and co-editor of Chronic Fatigue Syndrome: Critical Reviews and Clinical Advances (Haworth) Dr. Daniel L. Peterson, affiliate of the Sierra Internal Medicine Associates in Incline Village, Nevada; ME/CFS researcher and clinician; a board member of the American Association for Chronic Fatigue Syndrome; and member of the International Chronic Fatigue Syndrome Study Group Dr. Nancy G. Klimas, Clinical Professor of Medicine in Microbiology/Immunology/Allergy and Psychology, University of Miami School of Medicine; ME/CFS researcher and clinician; a board member of the American Association for Chronic Fatigue Syndrome; and member of the federal CFS Coordinating Committee Dr. A. Martin Lerner, staff physician at William Beaumont Hospital in Royal Oak, Michigan; Clinical professor and former chief of the Division of Infectious Diseases at Wayne State University's School of Medicine; and ME/CFS researcher and clinician Dr. Alison C. Bested, haematological pathologist; former head of the Division of Haematology and Immunology at the Toronto East General and Orthopaedic Hospital; affiliate of the Environmental Health Clinic and Sunnybrook & Women's College Health Sciences Centre, Toronto, Ontario; ME/CFS researcher and clinician Dr. Pierre Flor-Henry, Clinical Professor of Psychiatry, University of Alberta; Clinical Director of General Psychiatry and Director of the Clinical Diagnostic and Research Centre, both based at Alberta Hospital in Edmonton, Alberta, Canada; ME/CFS brain researcher Dr. Pradip Joshi, internal medicine, Clinical Associate Professor of Medicine at Memorial University of Newfoundland in St. John's, Canada Dr. A. C. Peter Powles, Professor Emeritus, Faculty of Health Science, McMasters University, Hamilton; Professor, Faculty of Medicine, University of Toronto; Chief of Medicine and Sleep Disorders Consultant, St. Joseph's Health Centre, Toronto; Sleep Disorder Consultant at the Sleep Disorder Clinic at St. Joseph's Healthcare, Hamilton, and Central West Sleep Affiliation, Paris, Ontario Dr. Jeffrey A. Sherkey, family medicine, affiliate of the University Health Network, Toronto, Ontario; and diagnosed with chronic fatigue syndrome nearly 10 years ago Marjorie I. van de Sande, Consensus Coordinator; and Director of Education for the National ME/FM Action Network, Canada Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols also addresses diagnostic exclusions and common co-morbid entities. This groundbreaking book is must reading for anyone connected with the disease—personally or professionally.

Fibromyalgia Chronic Fatigue Syndrome and Repetitive Strain Injury

Author: Physical Medicine Research Foundation. International Symposium
Publisher: Psychology Press
ISBN: 9781560247449
Format: PDF, ePub, Docs
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Fibromyalgia, Chronic Fatigue Syndrome, and Repetitive Strain Injury provides a summary of information from a conference on chronic fatigue syndrome (CFS), fibromyalgia syndrome (FS), and related disorders. Many of the contributors are known for being actively involved in the study of the target disorders and represent countries around the world. In addition to health professionals, the contributors represent the legal profession and the insurance industry of Canada. The unique feature of this volume is its emphasis on disability and compensation. In Fibromyalgia, Chronic Fatigue Syndrome, and Repetitive Strain Injury readers will find concise summaries of the formal presentations given at the Vancouver Conference in July 1994. The underlying tenor in the chapters is on viewing affective (psychological) pathology as a contributor to the underlying processes of these disorders. Readers are encouraged to follow closely the logic of each author's academic exercise. They will find that in many cases, the authors provoke more answers than they are able to answer, in the hope of promoting continued research toward finding concrete answers. The conference was designed to address etiology, pathogenesis, clinical features, treatment, disability, medico-legal issues and cost containment. The program agenda was issue driven rather than condition based. The papers were presented in a manner which allowed delegates and speakers to see the overlap and differences between these conditions. The purpose of Fibromyalgia, Chronic Fatigue Syndrome, and Repetitive Strain Injury is to provide education for primary care physicians, specialist physicians, other health care disciplines, patients, and the public. A second purpose is to enable investigators in the three topic areas to get new information from specialists around the world to develop new ideas, which will inform future research and consensus.

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Beyond Myalgic Encephalomyelitis Chronic Fatigue Syndrome

Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309316928
Format: PDF, ePub
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Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.